Table 1.

Patient characteristics at enrollment

TotalNBL measurableNBL evaluableAMLALLEWSRMSNR-STSOSWTHBLGCTMRT
Eligible (N)139252411101010101010874
Age (years)a10 (2–21)9 (3–20)8 (4–19)10 (3–15)13 (7–19)14 (6–20)12 (4–21)15 (9–20)17 (12–21)10 (3–18)6 (3–14)11 (3–19)5 (2–7)
 Female (%)45%48%29%55%30%30%70%50%30%70%38%57%50%
Race, n (%)
 Caucasian80 (58%)19 (76%)15 (63%)2 (18%)5 (50%)8 (80%)7 (70%)4 (40%)7 (70%)5 (50%)4 (50%)4 (57%)-
 Black21 (15%)2 (8%)4 (17%)2 (18%)2 (20%)-1 (10%)1 (10%)2 (20%2 (20%)2 (20%)-3 (75%)
 Other6 (4%)0 (0%)2 (8%)1 (9%)----1 (10%)-1 (10%)1 (14%)-
 Not specified32 (23%)4 (16%)3 (12%)6 (55%)3 (30%)2 (20%)2 (20%)5 (50%)3 (30%)1 (10%)2 (29%)1 (25%)
Ethnicity, N (%)
 Hispanic30 (22%)3 (12%)1 (4%)4 (36%)2 (20%)1 (10%)1 (10%)3 (30%)3 (30%)4 (40%)3 (38%)4 (57%)1 (25%)
 Non-Hispanic97 (70%)19 (76%)22 (92%)5 (46%)8 (80%)8 (80%)7 (70%)6 (60%)7 (70%)5 (50%)5 (62%)2 (29%)3 (75%)
 Not reported12 (8%)3 (12%)1 (4%)2 (18%)-1 (10%)2 (20%)1 (10%)-1 (10%)-1 (14%)-
  • aMedian (range).

  • MRT, malignant rhaboid tumor (2 patients with CNS atypical teratoid rhabdoid tumors and 2 patients with extracranial malignant rhabdoid tumors).